SPRINGVILLE — On Christmas Day of 2011, then-5-month-old Cole Kyle was diagnosed with tuberous sclerosis complex. This genetic disorder has resulted in eight tuberous tumors in his brain, which cause seizures.
Cole’s parents, John and Jennifer (nee DiNardo) Kyle live in Springville and transport their son to Boston Children’s Hospital in Massachusetts, for treatment at that facility.
Approximately 30 surgeons, neurologists and other medical professionals have determined that Cole is eligible for brain surgery. This procedure will remove the area where his seizures originate.
A benefit to raise money for Cole’s medical expenses will be held on June 23 from 2 – 8 p.m. at Oakwood Manor/Veterans of Foreign Wars. This event will include a pig roast.
Proceeds will go toward defraying Cole’s medical expenses that are not covered by his family’s insurance. The benefit will feature a theme auction, raffles and live music by Lickitty Split, Midnight Soul and Michael Hund and Allison Janet.
The benefit will also feature a bounce house and face painting. “Mr. No, the Balloon Guy” will perform from 3:30 – 5 p.m. and magician Mike Seege will take the stage until 6.
Presale tickets are currently available and tickets will also be sold at the door. Children 12 and younger may attend for free.
Financial donations may be made to the Cole Kyle Benefit, at any M&T Bank or may be sent to P.O. Box 333, Springville, NY 14141.
To request a donation pickup, get more information or purchase tickets, call 553-7032 or 949-9817.